Legal statement

Alexion Pharmaceuticals, Inc. (“Alexion” or “we”) provides this website as a source of general information about Alexion and netflow. This page describes the terms and conditions (hereinafter “Terms”) that apply to any user visiting (hereinafter “the Site”). This website may be linked to other websites and applications for mobile devices (“Applications”) provided by Alexion, which together with this website shall be referred to in this statement as the “Site”.

By using the Site, you acknowledge that you have read and understood the terms and that you accept them without limitation. If you do not agree to these Terms, please do not use the Site. As the Terms may be amended at any time without prior notice to you, we advise you to consult them regularly.

Please read this legal statement carefully before using the Site. This statement includes

  • Terms of Use
  • Alexion Privacy Notice
  • Alexion Cookie and Site Usage Policy

(“Terms of Use”, “Alexion Privacy Notice” and “Alexion Cookie and Site Usage Policy” collectively referred to as the “Terms”)

Terms of Use

Scope of the Site

The Site is intended to provide information on educational and practical resource for flow cytometrists, promoting greater awareness of paroxysmal nocturnal haemoglobinuria (PNH) and providing expert guidance in the detection of PNH clones by flow cytometry. The Steering Committee are consultants, retained and paid by Alexion Pharmaceuticals, Inc. who have provided and approved the content of the website.

The Site is intended to provide information on paroxysmal nocturnal haemoglobinuria (PNH) and its diagnosis written, composed and edited by the steering committee and Alexion in partnership with the external service provider McCann Complete Medical who provided editorial, maintenance and technical assistance.

The information contained on the Site is intended for informational purposes only. It is not a substitute for actual medical care, advice and is in no way intended to replace professional medical care or attention by a healthcare professional. Persons requiring diagnosis or treatment or with questions specific to a single individual are urged to contact their local healthcare provider. You should not use the information contained herein for diagnosing a health and/or fitness problem and/or disease. The information provided on the Site is not intended for minors.

Alexion has made reasonable efforts to ensure that information is complete and accurate when posted. However, Alexion makes no warranties or representations as to the completeness or accuracy of the information presented.

The Site may offer opinions by experts consulted in a particular field in relation to the content of the Site or excerpts from press articles. Experts’ opinions reflect their own personal views and should never be interpreted as being the opinion or responsibility of Alexion and its affiliates.

Information, especially financial (if any), published on the Site shall not be considered as an encouragement to invest. The Site may contain forward-looking statements regarding Alexion’s operations, financial condition, prospects, products, services, and strategies. Such forward-looking statements are based on estimates and projections about our industry, management’s beliefs, and certain assumptions made by our management. Such statements are subject to certain factors which may cause Alexion’s plans or results to differ from those expected, including, without limitation, decisions of regulatory authorities regarding marketing approval or material limitations on marketing of Alexion’s products; delays in arranging satisfactory manufacturing capability and establishing commercial infrastructure; the possibility that results of clinical trials are not predictive of safety and efficacy results of Alexion’s products in broader patient populations in the disease studied or other diseases; the risk that acquisitions will not result in short-term or long-term benefits; the possibility that current results of commercialization are not predictive of future rates of commercialization; the risk that third parties will not agree to license any necessary intellectual property to Alexion on reasonable terms or at all; the risk that third party payers (including governmental agencies) will not reimburse for the use of Alexion’s products at acceptable rates or at all; the risk that estimates regarding the number of patients is inaccurate; our ability to successfully complete preclinical or clinical development of our products; our ability to expand the use of our product in other indications; and other risks set forth from time to time in Alexion’s filings with the US Securities and Exchange Commission. Alexion undertakes no obligation to update any of these forward-looking statements.

You may use the Site for lawful purposes only. Alexion specifically prohibits the use of the Site for, and you agree not to: (i) use any device, software or routine to interfere or attempt to interfere with the proper working of the Site; (ii) take any action that imposes an unreasonably large load on the Site’s infrastructure; and (iii) decipher, decompile, disassemble, or reverse engineer any of the software comprising or in any way making up any part of the Site, or attempt to do the same.

Information included and published on the Site may include direct or indirect references to products, programs and services of Alexion that are not announced or available in some countries or some regions or that may be supplied under a different name and may be subject to regulations and terms of use that differ depending on the country. Such references do not mean that Alexion intends to sell those products, programs or services in your country. Please contact Alexion for any information about the products, programs and services available to you.

Restrictions on Use of Materials and Intellectual Property

The Site is owned and operated by Alexion. The contents of the Site, such as text, graphics, images, logos, button icons, software and other material (the “Material”) are protected under copyright, trademark, and other laws. You may not copy, reproduce, republish, modify, upload, post, transmit, or distribute Material in any way. For purposes of these Terms, the use of the Material or a modification of the Material on any other Site or networked computer environment is prohibited unless permission is obtained in writing from Alexion. You may not copy or adapt any Material we use to generate the web pages. This is also protected by copyright and other laws.

The following statement should appear on any authorized copy of all or part of the content of the Site: “COPYRIGHT ©2017 – ALEXION PHARMACEUTICALS, INC.- ALL RIGHTS RESERVED.”.

Links to Third Party Websites and Social Plugins

Links to other websites not controlled by Alexion (non-Alexion) are provided for convenience only. The Site also uses social plugins from the social networking sites Facebook, LinkedIn and Twitter.

In case you use such a plugin, your browser will contact the Facebook, Twitter and LinkedIn server and load the visual presentation of the plugin as well as present it to you. During this exercise, the Facebook, Twitter and LinkedIn server receives information concerning your visit of the Site of our internet presence as well as further data like your IP address.

By providing these links and social plugins, we are not endorsing or agreeing with content contained at any of the linked sites. Furthermore, the content of the linked websites is not part of the Site. The use of third-party sites and social plugins is at your own risk and subject to the terms and conditions of the third-party site.

Neither Alexion nor any other party involved in creating, producing, or delivering the Site or any linked non-Alexion site from or to this Site shall be liable in any manner whatsoever for any damages of any nature arising out of your access to this Site or any linked non-Alexion site and/or social plugin from this Site, or any errors or omissions in their content. In addition, you are responsible for taking the precautions necessary to prevent any infection, in particular by one or more computer viruses, Trojan horses or any other “virus”.

We also want you to know that when you link from an Alexion website to another website and/or use the social plugin function, the website and/or the social plugin provider may have the ability to recognize that you have come from the Site. If you do not want any other websites and/or provider to know that you have been on this Site, we recommend that you do not use the links and social plugins provided in our Site.


Alexion appreciates hearing from interested parties and welcomes your comments regarding Alexion’s products or technologies, including Alexion’s on-line services. However, Alexion’s company policy does not allow it to accept or consider confidential creative ideas, suggestions, inventions, note drawings, concepts, materials or other information (collectively “Information”) other than those it has specifically requested in writing. If you nonetheless send us any Information, it shall be deemed, and shall remain, the property of Alexion. None of the Information shall be subject to any obligation of confidence on the part of Alexion and Alexion shall not be liable for any use or disclosure of any Information. Without limitation of the foregoing, Alexion shall exclusively own all now known or hereafter existing rights to the Information and shall be entitled to unrestricted use of the Information for any purpose whatsoever, commercial or otherwise, without compensation to the provider of the Information.

Limitation on Liability

The Site is for informational purposes only. You should not use the information contained herein for diagnosing a health or fitness problem or disease. Alexion makes no warranties or representations as to its accuracy. The materials in this Site are provided “as is” and without warranties of any kind either expressed or implied. To the fullest extent permissible pursuant to applicable law, Alexion disclaims all explicit or implicit warranties, including but not limited to implied warranties of merchantability and suitability for a particular purpose of the Site.

Consequently, except for direct damages resulting from gross negligence or willful misconduct, Alexion assumes no liability or responsibility for any direct, indirect, special, incidental or consequential damages under any legal theory arising out of or in connection with this Site; for any inaccuracy, errors or omissions in the content of Site; for any damage resulting from fraudulent intrusion by a third party resulting in an alteration of information or items made available on the Site or for the ability or inability to use the Site or the information contained herein. Furthermore, Alexion does not warrant that the functions contained in the materials will be uninterrupted or error free; that defects will be corrected or that this Site or the server that makes it available are free of viruses or other harmful components.

Availability of the Site

You acknowledge that (i) it is technically impossible to provide the Site free from any defect and that Alexion cannot undertake to do so; (ii) defects may lead to the Site being temporarily unavailable; and (iii) operation of the Site can be affected by events and/or matters that Alexion does not control. Alexion may, at any time, alter or interrupt, temporarily or permanently, all or part of the Site to undertake maintenance and/or make improvements and/or changes to the Site. Alexion is not responsible for any alteration, suspension or interruption of the Site.

Trademark and Copyright Information

©Copyright 2013-2017 Alexion Pharmaceuticals, Inc. This Alexion website is protected by copyright, including images, layout, and text. All rights reserved.

ALEXION, the ALEXION logo, DEDICATED TO RARE DISEASES, PNHSOURCE, and PNH REGISTRY, whether or not appearing in bold typeface or with the trademark symbol ®, are trademarks of Alexion Pharmaceuticals, Inc. Alexion’s trademarks are registered in the United States, European Union, and in other countries worldwide and may not be used without permission. Use, reproduction, copying, or redistribution of these trademarks is prohibited.

The use or misuse of these trademarks, copyrights, or other materials is expressly prohibited and may be in violation of copyright law, trademark law, communications regulations and statutes, and other laws, statutes, and/or regulations. The following trademarks are trademarks owned by a third party:

  • Beckman Coulter
  • Becton Dickinson
  • CS&T
  • FlowCheck

ALEXION, the ALEXION logo, whether or not appearing in bold typeface or with the trademark symbol ®, are trademarks of Alexion Pharmaceuticals, Inc.  Alexion’s trademarks are registered in the European Union, the United States, and in other countries worldwide and may not be used without permission. Use, reproduction, copying, or redistribution of these trademarks is prohibited.

Photo/Video Credits:

  • École Polytechnique Fédérale de Lausanne.
  • iStock
  • Getty images
  • Science photo Library
  • Shutterstock

Legal Provisions

The Site and its content are governed by and interpreted in accordance with the laws of the United States of America, any dispute relating thereto are subject to the jurisdiction of the courts of Connecticut. Alexion reserves the right to limit provision of any product or service to any person, geographic region or jurisdiction and to limit the products or services that we provide.


If any of these Terms are held invalid or unenforceable by any court of competent jurisdiction, the other provisions of these Terms shall remain in full force and effect. If any provision of these Terms are held invalid or unenforceable only in part or degree, the remainder will continue in full force and effect to the extent not held invalid or unenforceable.

How to contact Alexion

If you have any questions about the Terms of the Site, you may contact us as follows:

Alexion Pharmaceuticals, Inc.
Legal Department
100 College Street
New Haven, CT  06510

Phone: +1 475-230-2596

Last updated on: June 29, 2017.

Alexion Privacy Notice

At Alexion, our mission is to provide hope to patients and families affected by rare diseases. As stewards of data about these patients and the health care professionals who treat them, we believe that respecting and protecting that data is a key part of delivering lifesaving medications. We are committed to handling personal data fairly and transparently in support of our mission and in accordance with the laws and regulations that govern data protection and privacy.

Alexion Pharmaceuticals, Inc., 100 College St., 06510 New Haven, Connecticut, USA, and the Alexion affiliate in the country in which you are located as data controllers, and our affiliates (“Alexion”, “we”, “us”) are providing this statement of our privacy and data protection practices to inform you of the reasons that we collect data about you and how we will respect your rights. This is a statement of our privacy practices relating to how Alexion may collect, store, process and use certain information about you; this is not a contract.

How We Collect Personal Data and Why We Use It

We collect personal data (“Personal Data”) about you both through interactions we have with you as well as from third party professional sources. We use that Personal Data in the following ways:

Respond to You: We collect your data, such as name, address, email, country, phone number, and any other Personal Data that you share when you voluntarily provide it to us via email or via the forms available on this Site.

By providing Personal Data to us, you give your consent to these being processed by Alexion for the purpose of answering your question, granting you access to the Site or some other aspects defined on the Site or requested by you. If you submit Personal Data, we may use that information to contact you by email, phone or mail as you indicated to provide you with information you have requested. Thus, with the exception of the Personal Data outlined above, all information, whatever form it is in: documents, data, graphics, questions, suggestions, concepts, remarks or other – which you communicate on the Site will in no way be considered as confidential. The simple fact of you transmitting this data to us grants us the right to use, reproduce, diffuse or modify this data, or to transmit it in the aim of processing your request.

Our Site is not intended to collect your Sensitive Personal Data, however, we may collect Personal Data of a sensitive nature about you when you voluntarily provide your health or medical information. By providing us with your Sensitive Personal Data, you consent to Alexion processing this Personal Data.

Personal Data to provide you with communications: We use your Personal Data to provide you with emails, communications and newsletters, in alignment with your request and explicit consent. If at any point you wish to cease receiving emails, communications or newsletters, please indicate by selecting the unsubscribe link on our communications.

Personal Data collected via social media plugins: When you select any plugins from this Site, Alexion is bound by the privacy practices and statements of these social media platforms. By selecting a social media plugin, you consent to sharing of Personal Data as provided for in the applicable social media platform. We encourage you to review all privacy statements prior to providing any Personal Data via a social media plugin.

Data automatically collected: We may automatically collect certain types of Personal Data whenever you interact with us on the Site. Examples of such Personal Data include your IP address, geographical location, browser type, device type, operating system, etc. We may use this Personal Data to improve the quality of the Site and it is only used in an aggregated form. This depersonalized, aggregated information collected from our Site help us to understand trends and your needs. For example, we may analyze location of visitors and the pages visited on the Site and time spent related to a particular medication or disease state, and we may use that analysis of aggregate data internally or share it with others for the purposes set forth in this Privacy Notice. Alexion gathers this usage data and site information in order to maintain our Site and provide you services, which we do so under legitimate purposes. Additionally by continuing to use our website, you consent to the processing of this Personal Data.

For further information please see our Cookie and Site Usage Policy

If you have any questions regarding the legal basis for our usage or collection of your Personal Data, please feel free to contact Alexion as provided below.

Personal Data Sharing and Recipients

Alexion will not disclose to third parties your Personal Data without adequate organizational and technical measures in place in order to protect your Personal Data. Third parties Alexion might work with are:

  • Vendors and service providers who assist Alexion (e.g. for processing and mailing purposes, website management, etc.).
  • Third parties in connection with the sale, assignment or other transfer of an Alexion business.
  • Third parties to respond to requests of government or law enforcement agencies or where required or permitted by applicable laws, court orders, or government regulations.
  • When needed for corporate audits or to investigate or respond to a complaint or security threat.
  • Any affiliated entity, vendor or service provider, or other third party who has permitted access to or to whom we transfer Personal Data is required to keep it confidential and secure, as well as to process it only for the purposes we have informed you of in this privacy statement or for which you have consented.

Protecting Your Personal Data

Alexion uses appropriate privacy and security controls and processes that are designed to help protect your Personal Data.

International Personal Data Transfer

Alexion is an international organization with affiliates and subsidiaries worldwide. Some of these have their registered offices or are located in countries not providing for the same level of data protection as the country where you reside (including in other countries that do not provide for the same level of regulatory data protection). In order to protect your privacy to the highest degree, where data are transferred by or on behalf of Alexion to other countries or organizations that have not been recognized as providing regulatory protection similar to your country, Alexion contractually obliges its international entities, affiliates and service providers to comply with the applicable data protection laws and principles through standard clauses that have been approved or recognized by the relevant regulators.

Website Hosting

The Site is hosted by UKFast, a third party vendor contracted by McCann Complete Medical [19-21 King Edward St, Macclesfield, SK10 1AQ] in the UK.

Your Rights

You may contact us at any time to ask us what Personal Data we process about you. To the extent provided for under applicable law, you may also inquire about correcting inaccurate information, accessing a list of providers and their data processing locations currently used by Alexion, or to raise other concerns about how we are handing Personal Data, to opt out of or suppress certain data processing or to request deletion, restrictions or withdrawal of your explicit consent. We will honor your request in accordance with the applicable laws and regulations and in a manner consistent with Alexion’s privacy commitment. In accordance with applicable law, as a result of withdrawal of your consent, your Personal Data will be deleted from Alexion records, and Alexion will ensure that this Personal Data is deleted from its associated service providers, unless the Personal Data cannot be deleted where we are required to retain it by applicable laws and regulations.

You may contact us through the following ways:

By mail:

Alexion Data Protection Officer
Veneto Privacy
20-21 Saint Patricks Road
Co. Dublin

By email:

You also have the right to lodge a complaint with the privacy or data protection regulator in your country of residence.

Privacy Statement for Minors

Our Site is not intended or designed for persons under the age of 18 (hereinafter “minor”). If you are under the age of 18, you must not provide your Personal Data. We will not knowingly collect, use or disclose Personal Data from minors without the prior written consent from his/her parents and/or legal guardian.

Additional Information on Websites

If parts of the Site have particular provisions relating to privacy that differ from those stated here, those provisions will be disclosed to you on the page on which your Personal Data is collected.

Retention of your Personal Data

Alexion retains your Personal Data no longer than necessary for the purpose for which it was processed for the duration of our relationship with you, unless a longer period is required to comply with applicable laws. Retention periods may vary depending on purpose for which the Personal Data was collected and used.

Updates to Website Privacy Statement


Last updated on: May 25, 2018.

Alexion Cookie and Site Usage Policy

This Site uses cookies helping us to deliver our services. By using our services, you agree to our Cookie and Site Usage Tracking Policy.

Automatic technologies we use may include, for example, web server logs and IP addresses, cookies and web beacons. We may also use tracking technologies and third-party analysis services to understand site-usage patterns.

Web Server Logs and IP Addresses: An IP address is a number assigned to your computer whenever you access the Internet that allows computers and servers to recognize and communicate with each other. Alexion may collect IP addresses to conduct system administration and report aggregate information to affiliates, business partners, service providers and/or vendors to conduct website and application analysis and performance reviews.

Web Beacons: A web beacon is an unobtrusive web object (image, code) placed on the website pages to verify whether the visitor has accessed the site and also to collect some basic information such as IP address.

Cookies: A cookie is a piece of information that is placed on your computer when you access certain websites and applications. The cookie uniquely identifies your browser to the server. Cookies allow us to store information on the server to help make your web experience better and to conduct website and application analysis and performance reviews. Most web browsers are set up to accept cookies, although you can reset your browser to refuse all cookies or to indicate when a cookie is being sent. Note, however, that some portions of our Site may not work properly if you refuse cookies.

Our site may use Session and\or Persistent cookies:

Session cookies: Session Cookies are stored only temporarily during a browsing session and are deleted from the user’s device when the browser is closed.

Persistence cookies: This type of cookie is saved on your computer for a fixed period (usually a year or longer) and is not deleted when the browser is closed. Persistent cookies are used where we need to know who you are for more than one browsing session. For example, we use this type of cookie to store your preferences, so that they are remembered for the next visit.

Web Analytics and Third Party Services: This Site may use a web analytics service from time to time made available by Google, Inc. (“Google”) called Google Analytics. This service uses cookies to provide information on how users use the Site. The information generated by this service will be transmitted to and stored by Google on servers in the United States. Google will use this information for the purpose of evaluating your use of the Site as well as generating reports on Site activity and other services relating to activity and usage of the Site. You may refuse the use of cookies and therefore this web analytics service by selecting the appropriate settings on your browser; in such case, however, you may not be able to use the full functionality of this Site.  By using this Site, you consent to the processing of data about you by Google in the manner and for the purposes set out above. Although the data is stored and analyzed by Google tools, it can be accessed only by Alexion or its third-party vendors through secure logins for Site usage analysis.

Cookies and other tracking technologies do not automatically obtain personal information about you. Only if you voluntarily submit personal information, such as by registering or sending e-mails, can these automatic tracking technologies be used to provide further information about your use of the websites to improve their usefulness to you.

Your Choices

If you wish to prevent cookies from being used and tracking technology from tracking you as you navigate our Site, you can reset your browser to refuse all cookies and/or tracking technology or to indicate when a cookie is being sent. To learn more about how to do this, visit the help pages of your browser.  You can delete all cookies that are already on your computer and you can set most browsers to prevent them from being placed. If you do this, however, you may have to manually adjust some preferences every time you visit a site and some services and functionalities may not work.  To find out more about cookies, including how to see what cookies have been set and how to manage and delete them, visit

The Site also offers the possibility to disable cookies through a function provided at the bottom of the site.

Last updated on: June 27, 2017.

© 2019 Alexion Pharmaceuticals

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